Wednesday, April 04, 2007

What now?

We are now over six months past Evan's last heart surgery. I find myself at loose ends. All of Evan's life there has been a surgery hanging over our heads, looming in the not so distant future. Now? There is nothing planned, nothing to plan for, we just wait. We wait to see if things change if, some how, despite expectations things get bad.

The number of doctor's visits are rapidly decreasing. This was Evan's last winter on Synagis. Next winter we will not have to visit the pediatrician monthly, in fact we may be able to go the entire year between well visits with out seeing him (stranger things have happened). Evan is only seeing his cardiologist as often as he is because he flat out refuses to let me use the equipment to monitor his pacemaker over the phone, so they have to do it in the office.

All of these wonderful things mean that suddenly Evan can start just being a kid now. The intrusions into his life are shrinking leaving only his physical therapy which to him is like having an adult come over to just play with him. I think I am going to have to come up with a new hobby or something.

13 comments:

Tracy said...

I can only imagine how strange that feels for you. While it must be great to not have so many dr visits, etc ... that has been your norm for such a long time ... it will take some getting used to. Now you can just sit back (or as much sitting as a mom of 2 little boys really does!) and watch your son be ..... a little boy :)!

Magpie said...

A little bittersweet moment...you'll settle into things, him being just a kid and all. Maybe you should plan a summer vacation...use that as the event in the future.

chichimama said...

That's wonderful! It must feel so odd though. I am sure you will get used to it :-)!

Karen said...

It's sort of like how I feel when we take a break from home schooling in the summer. I'm just not quite sure what to do with myself when the one thing that has occupied so much of my time is over.

I'm positive you'll find SOMETHING to fill that time with!

I know, it will give you more time to get ready for your cushy job on a tropical island under my reign! HA!

MamaLee said...

Odd and strange. And good.

Enjoy this time!

Guinevere Meadow said...

I'm so happy for Evan!! What an incredible blessing this is!

Let's see. More time for blogging, perhaps?

Damselfly said...

I'm so excited for Evan and you! So amazing.

chelle said...

hehe Knit and Blog with your free time! :) I am glad he is doing better and all of your lives can resume to "normal".

Jocelyn said...

What a lovely time of transition. Shifting gears always takes a little time, eh?

PJ said...

It's good to know he has made such progress.

I'm sure it is a strange, but good time for mom.

riceandsoup said...

It's just another new normal to get used to. :)

Zephra said...

Thank God. I wish him well always

Emily Elizabeth said...

Now this, this is a great post.

I think it might just be freedom that your are tasting. Tastes good, huh?