We are now over six months past Evan's last heart surgery. I find myself at loose ends. All of Evan's life there has been a surgery hanging over our heads, looming in the not so distant future. Now? There is nothing planned, nothing to plan for, we just wait. We wait to see if things change if, some how, despite expectations things get bad.
The number of doctor's visits are rapidly decreasing. This was Evan's last winter on Synagis. Next winter we will not have to visit the pediatrician monthly, in fact we may be able to go the entire year between well visits with out seeing him (stranger things have happened). Evan is only seeing his cardiologist as often as he is because he flat out refuses to let me use the equipment to monitor his pacemaker over the phone, so they have to do it in the office.
All of these wonderful things mean that suddenly Evan can start just being a kid now. The intrusions into his life are shrinking leaving only his physical therapy which to him is like having an adult come over to just play with him. I think I am going to have to come up with a new hobby or something.