Wednesday, May 17, 2006

Fun with Coumadin

Because I was crazy busy last week I totally spaced testing Evan's INR. I do the test every other Friday at home. The machine is very much like a glucose monitor but it takes more blood to run the test. It is a great measure of the trust that Evan's Cardiologist has in me as a parent that I am able to do this at home instead of having to go into the office and have them do it.

Today Evan's numbers were high. This is something that has never happened before. They have come up low and I then will have flashes of Evan having another stroke. His medication will be adjusted upward and then the next test is usually fine. Evan's numbers being high presents a whole new problem. I have flashes of him tripping, falling and scraping his knee which then proceeds to bleed for a really long time. Or I have visions of being in a car accident and Evan being injured in a way that would not normally be fatal but because of his high numbers he bleeds out in an incredibly short amount of time.

Because of my overactive imagination we stayed at home in where things are padded. Evan was not happy about that. He loves being outside, looking at cars, going shopping and other things that do not involve staying at home all day. I hate that I have to feel this way, that I have to feel so protective of him. I know that things happen that are out of my control. I don't want to be overprotective of Evan and turn him into a creepy child that has no social skills and lives with his mother when he is 40. I want him to be able to grow up as a strong confident child..... a strong confident child that knows enough to take care of his health and will stay safe at home when his INR is too high.

6 comments:

Nicole said...

That is terrible. I feel for you. We worry so much as moms, don't we. And you have a whole extra set of stuff to worry about. You did what you thought was best for your son and I'm sure you staying home yesterday won't turn him into an antisocial person. It sounds like you do take him out a lot. Hang in there and know your doing what is best for you and your son.

Gina said...

Coumadin is a blood thinner, right?

It must be so hard for everyone when something like that happens. Poor little guy, I'm sure you can't wait for him to get older so that you can explain your actions rather than just seeming like a mean mommy.

Valerie said...

I remember having the same fears when I was on Coumidin, i can not imagine being scared for my child that way. I think staying in the house with him is aa great idea.

Awesome Mom said...

Yes, coumidin is a blood thinner. Hopefully after his surgery this fall he will not have to take it any more. The surgen is going to try and fix it so the area causing the turbulance in the flow of blood in his heart is not causing problems any more.

frostedlexicharm said...

My son was also on anticoagulants and for some reason we couldn't get his INR to stabilize with coumadin/warfarin. We literally went from having him pingpong between .8 and 4.8 without having the dose change at all. (We knew something was dreadfully wrong at 4.8 when he was pooping straight blood into his diaper.) We eventually switched to aspirin and he's been stable on that.

Awesome Mom said...

I wish Evan was able to take asprin, but he was on asprin therapy when he had his stroke so it obviosly does not work for him. He was on Lovenox for six months after his stroke. It is much more sable but it also means that I have to inject him twice a day and that is just no fun for me or him. It seems that there really is no easy answer when it comes to anitcoagulation.