My day did not get any better, in fact it got a whole lot worse. During the break between sessions we got a phone call that my husband answered. It was the male cardiologist that works with Evan's cardiologist. He had just been looking over the results of Holter monitor test that was done while Evan was in the hospital. There were issues and we needed to get to the city and have Evan's pacemaker interrogated. He also wanted us to be prepared in case he had to admit us to the hospital.
Once I got down to the city and Evan's pacemaker had been looked at (under great protest from Evan) it showed that it was not pacing correctly. The pacemaker guy had to change things around so that it worked like it should. That change has shortened his battery life to three months. We got to go home but Evan is back on a Holter monitor to see if things are getting worse and he was also put on a mega dose of steroids to see if that would help with the swelling from his heart surgery. That slight swelling could be what is causing the pacemaker issues.
Getting the new medication added another layer to my frustrations. By the time we got home most pharmacies were closed. The single local one that was open did not have the medication we needed in stock. The pharmacist was nice enough to call around to find one that was open and did have it in stock. Sadly that one was quite a drive away.
After waiting over an hour to get the medication I drove home past a fresh car accident. An accident that had started a small brush fire and knocked out a power pole. I had to go through three major intersections that were dark. I get ulcers every time I have to do that because I am so worried that I am going to end up in an accident because someone goes at the wrong time.
I left the house at 2:15 and got home for good (I did a brief stop to drop Evan off at home for dinner) at 8:30. I now have a full week of appointments related to Evan. Cardiologist on Monday, physical therapy on Tuesday, Pediatrician on Wednesday, Cardiologist again on Thursday and Friday he sees the dentist. It is a good thing he is cute, because he is a ton of work.