Saturday, February 14, 2009

Happy Valentine's Day

Today is also Heart Defect Awareness Day (Get it? A day about hearts and love is a day when we should remember that some hearts are born wonky.) Any way it has been one draining week for me, so I don't have a special meaningful post to put up. One of the realities of having a child with a heart defect is that there are a lot of doctor's appointments to deal with and often there is therapies as well adding to that my heavy load of appointments leads to a tired mom and this week was jam packed with appointments.

Evan finally got into occupational therapy. We were on the waiting lift forever but I hope it will be worth it. In California Evan's physical therapist was doing a ton of the things that on OT would do so we were able to have only one person taking care of both therapies. At the center he goes to for his PT things are a bit more rigid. I wanted to get in at this center though because they also work at the school district that Evan will be attending Kindergarten (gasp can he really be that old?). I wanted there to be some continuity of care with his therapy.

The crazy thing with the evaluation was that the woman doing it was able to get Evan to do a lot of things that I have been trying to get him to do for months now. He happily tried to trace letters for this woman. If I had tried to get him to do it he would have looked up at me angelically and told me "Mommy you do it." He even did well with cutting a shape out of a piece of paper considering that I have never purposely let him touch scissors fearing all the damage he could inflict on the house with them. I was never worried about him doing too well since he had the obvious handicap of only doing all these things with one hand. It does prove that he is a slacker at home when he thinks he can get me to do stuff for him.

I had an OB appointment today and the baby is still in there. He kicked up a storm when they were getting his heart rate. I get to go to an ophthalmologist to have my eyes checked out since I have gestational diabetes and they want to make sure that I am not loosing my eyesight thanks to that. I also get to collect my urine for 24 hours so that they can see how well my kidneys are functioning. I am oh so thrilled that I get to go to yet another appointment and get to store my pee in the fridge for a day (the things you do when pregnant). Now that I am heading into the home stretch for my pregnancy I have bimonthly appointments to add to the mix.

I swear it seems like for the last few months all I have been doing all the time is going to doctors appointments. I am really hoping that Evan's appointments taper off now that his pacemaker surgery is over. Evan doesn't seem to mind a bit though and has actually asked to go see a doctor when faced with the dreary prospect of spending a morning at home. I will never see going to the doctor as a form of recreation no matter how hard I try.


Posh Totty said...

Happy Valentines Day Xx
and happy CHD awareness day too :o) Xxx

My Ice Cream Diary said...

Oh, I hope you get a really boring week, filled with staying at home and not peeing in cups or having to sooth your son through another test.

You deserve it!

Aunt Kathy said...

I am glad to hear Evan tried things with the new therapist... now he just has to stop getting mommy to pick up his slack, lol.

I hope you are feeling well, even with all the running around.

Happy Valentines day

Gabriela said...

Hang in there-it would be so hard to deal with all the appointments-both yours and Evan's-and being pregnant all the while! Yuck! You'll look back and be grateful you made it through. :)

happy Valentine's Day!

Guinevere Meadow said...

Oy. That's a lot of doctors!

At least he won't be one of those kids who is terrified to go to the doctor and screams all the time.

Amber said...

I hope you had a great awareness day yesterday! We got invited to a fundraiser for the hospital's cardiac center on Valentine's Day and I thought it was a brilliant and important tie-in!

Life's a Stitch said...

I was surprised to hear about waiting lists in the US. My cardiologist referred me to a different kind of cardio before Christmas and I just got the appointment - in June.

chelle said...

Glad you made it through a week of appointments! I find them tiresome as well!

My kid totally performs better for others than me, drives me crazy!

Damselfly said...

Aw, one appointment after another. Hope you guys can get out and have a little fun.

Do you label your urine as pee when you put it in the fridge? Just so it doesn't get mistaken for, say, apple juice? ;)

Midlife Midwife said...

Don't store that 24 hour urine in the fridge...ugh. Put it in a basin or ice chest filled with ice on your bathroom floor and just replace the ice as needed. (now this assumes you can lock the kiddos out of your bathroom so they don't think they can spill moms bottle!)