tag:blogger.com,1999:blog-17635299.post115519689625813254..comments2023-08-09T10:22:07.209-05:00Comments on Adventures Of An Awesome (Sometimes) Mother: How long?Awesome Momhttp://www.blogger.com/profile/03523320907836876707noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-17635299.post-43352425054153332622006-11-05T19:55:00.000-06:002006-11-05T19:55:00.000-06:00Hi, I got here from the Pediatric Grand Rounds. Y...Hi, I got here from the Pediatric Grand Rounds. You don't say exactly how old he is, but the "sippy-cup" makes me think toddler range.<br /><br />The thing is, that "prevailing wisdom" might apply to adults, but I seriously doubt it applies to a toddler! Anywhere in that age range, his brain is still pretty plastic, and he's got lots of time to continue "compensating" -- both rewiring around Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155303058253519652006-08-11T08:30:00.000-05:002006-08-11T08:30:00.000-05:00My heart goes out to you. Watching your child str...My heart goes out to you. Watching your child struggle is hard. I know because my child has spastic quadriplegia (a form of cerebral palsy). Give the hand more time. I think he will start using it more. My boy wasn't able to use either hand much at first but he's gotten pretty good with the left and has started using the right hand a little more. The therapy is huge. Sometimes it seems Melhttps://www.blogger.com/profile/17143392629785332250noreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155277405070445152006-08-11T01:23:00.000-05:002006-08-11T01:23:00.000-05:00Hey Awesome Mom...I've been trying to send you a s...Hey Awesome Mom...I've been trying to send you a super long email but your email address isn't working for me. Could you email me at willkristi@yahoo.com? Thank you so much! I can't wait to hear from you.Willhttps://www.blogger.com/profile/18058563616065772470noreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155269339679926712006-08-10T23:08:00.000-05:002006-08-10T23:08:00.000-05:00Evan will adapt! He will find ways of getting thin...Evan will adapt! He will find ways of getting things done that you nor any other trained professionals could have ever thought of. Accepting all of Evan is important, but he's not his disability, he's Evan. Accept all of him just as he accepts all of you. No one is perfect. As far as "prevailing wisdom", screw that! I've seen people walking and talking that "prevailing wisdom" deemed they would Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155266890394611282006-08-10T22:28:00.000-05:002006-08-10T22:28:00.000-05:00I know I'm just your mother, but whatever he will ...I know I'm just your mother, but whatever he will or will not be able to do, I just feel happy he is ours.Nancy Evanshttps://www.blogger.com/profile/18291751479483600003noreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155249692724333542006-08-10T17:41:00.000-05:002006-08-10T17:41:00.000-05:00Accepting does mean labeling. If Evan does not ev...Accepting does mean labeling. If Evan does not ever regain much functional use of his hand he will have a disability. That means he will be considered disabled by society at large. If I send him to public schools I will have to meet with administrators and have special educational plans in place for him. If he never regains functional use of his left hand there is a whole host of things that Awesome Momhttps://www.blogger.com/profile/03523320907836876707noreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155245615312530192006-08-10T16:33:00.000-05:002006-08-10T16:33:00.000-05:00I would try not to put a label on it, especially t...I would try not to put a label on it, especially this early in the game. Your frustrations are founded...all you want is for your little boy to be whole. For now, just do what you're doing: have faith that it will happen and enjoy him in the now!Anonymoushttps://www.blogger.com/profile/04135190793124857820noreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155237657745259932006-08-10T14:20:00.000-05:002006-08-10T14:20:00.000-05:00Its an awkward little place to be, isn't it? My 22...Its an awkward little place to be, isn't it? <BR/><BR/>My 22mo daughter is developmentally behind, and I spend a lot of time wondering when I need to help her out, and when its better to let her 'do it herself'. What I finally did was both: I taught her the sign for 'help', then when I think she might need help, I ask. If she signs 'help', I do; if she doesn't, I back off. <BR/><BR/>As far as PT/bellahttps://www.blogger.com/profile/04648691129113717331noreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155224732535373692006-08-10T10:45:00.000-05:002006-08-10T10:45:00.000-05:00For the record this is more of a rhetorical questi...For the record this is more of a rhetorical question than an advice question. I have no intentions of stopping physical therapy as there are still improvments even if they are small. I am just trying to mentally plan ahead and think about how long this should go on and when things will not get any better.Awesome Momhttps://www.blogger.com/profile/03523320907836876707noreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155218235256175532006-08-10T08:57:00.000-05:002006-08-10T08:57:00.000-05:00I am not sure accepting means labeling. Have you t...I am not sure accepting means labeling. Have you talked to his physical therapist? I can imagine how difficult this must be for you. Hugs.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-17635299.post-1155215121484763532006-08-10T08:05:00.000-05:002006-08-10T08:05:00.000-05:00I am not sure as I have never been in this situati...I am not sure as I have never been in this situation but I say a little longer would not hurt too much. Doc said a year and it is only 1 1/2 year. Give it a little longer. Bless you.Zephrahttps://www.blogger.com/profile/04036187147036400140noreply@blogger.com